Wednesday, August 20, 2008

WJON State/Regional News


Minn. family sues co. for muscular dystrophy drug
by The Associated Press

WASHINGTON -- A Minnesota family has filed a lawsuit seeking to force a drug company to let their son have access to an experimental drug for a terminal form of muscular dystrophy.

Jacob Gunvalson is a 16-year-old boy from Gonvick who suffers from Duchenne (DO'-shane) muscular dystrophy. He's been excluded from clinical trials for the drug by PTC Therapeutics of South Plainfield, New Jersey.

He and his parents sued in federal court in New Jersey on Wednesday, alleging that the company had told them earlier that the he would get access to the drug.

Seven years ago, Gunvalson's mother, Cheri Gunvalson, helped persuade Congress to significantly boost spending to find a cure for the disease. Now, the family says it's unbelievable their son won't benefit from those efforts.

PTC Therapeutics had no immediate comment on the lawsuit Thursday.


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